Thursday, October 13, 2011

October 13 is Metastatic Breast Cancer Awareness Day

In the middle of Pinktober, one day was set aside by Congress in 2009 to bring greater attention and awareness to the 155,000 of us who will never be pink ribbon survivors, but are surviving every day, living with advanced breast cancer, also known as Stage IV or metastatic breast cancer. Most of us began with an earlier stage of cancer and thought we were safe, cured, permanently in remission. Yet, 40,000 of us continue to die each year, a number unchanged in the last 10 years, despite the "progress" in the government's 40 year war on cancer.

I work with Metastatic Breast Cancer Network, the organization that lobbied for October 13 and continues to fight for more research dollars for treatments to extend our lives. We strive to raise awareness with the public and the breast cancer community about metastatic disease and to educate patients to be their own best advocates in their treatment decisions.

On this day, I would like to honor all the wonderful people I've met and worked with who have metastatic cancer, who continue to work for the cause, raise their families, support each other and live every day to the fullest.  Yes, our statistics are challenging and we often despair where all that breast cancer money goes, but today of all days we deserve a little Emily...

Hope is the thing with feathers by Emily Dickinson
 
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all, 


And sweetest in the gale is heard;
And sore must be the storm
That could abash the little bird
That kept so many warm. 


I've heard it in the chillest land,
And on the strangest sea;
Yet, never, in extremity,
It asked a crumb of me.

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